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Law Trails Behind as Disputes Over Genetic Patents Intensify

Posted Jul 3, 2009, 09:00 am CDT

By Brendan L. Smith

Lisbeth Ceriani
Photo by Webb Chappell/
Wonderful Machine

After being diagnosed with an aggressive type of breast cancer, Lisbeth Ceriani had a double mastectomy last year followed by chemotherapy that caused her hair to fall out in clumps.

Just when she thought the worst was over, she learned that some of the genes in her body that led to the cancer were patented.

Myriad Genetics, based in Salt Lake City, holds pat­ents on two genes and their mutations that have been linked to hereditary forms of breast and ovarian cancer. As a result, the private biotech company offers the only genetic screening tests for the diseases.

Ceriani, a 43-year-old single mother who works part time and lives in a Boston suburb, needs to know wheth­er she is at risk for ovarian cancer and should have her ovaries removed. But she can’t afford the $3,200 genet­ic test.

“When I found out there was a patent on the gene and… Continue reading...

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